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Tommy Pham
Tommy Pham
Story
Hi there! I’m raising money for a rare disease that’s close to our hearts. Please support my efforts by making a donation and leaving a message of support. All donations support the Raiden Science Foundation (RSF) and its goal of raising $2M this year to develop a gene therapy for kids like Raiden who have UBA5 disorder. After receiving positive feedback from the FDA last November, RSF is ready to take the next big step, bringing this treatment closer to patients and keeping hope alive. Reaching this goal depends on the funding we raise together. Thank you so much for your support!
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Raiden Science Foundation
We are overcoming traditional research barriers to advance treatment for UBA5 Disorder, a debilitating and ultra-rare genetic disease. In doing so, we are pushing forward medical breakthroughs, such as gene therapy, to help children all around the world who are suffering from UBA5 Disorder and, ultimately, other rare diseases.
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